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Alzheimer’s disease is a type of dementia that affects the nerve cells in the brain. A protein build-up called “plaque” damages brain tissue. Over time, the plaque continues to grow, affecting many parts of the brain. More than half of those with Alzheimer’s will suffer from incontinence issues, between 60 and 70%. Urinary Incontinence is not certain with Alzheimer’s disease, although it is common in the middle to late stages. If it occurs, evaluation by the doctor should determine if other causes of incontinence are present. Other causes of incontinence include:
For those suffering from Alzheimer’s disease, incontinence can be caused by the inability to recognize the need to use the bathroom. They may forget where the bathroom is or they may know they need to urinate but not remember what to do. When symptoms of incontinence start, they may not be related to Alzheimer’s at all. Here are some reasons a person with Alzheimer’s may have difficulty with incontinence:
Those with Alzheimer’s may move slowly. Clothing and the surrounding environment can make it difficult to get to the bathroom in a timely fashion to avoid the incontinent episode. Here are a few tips to help:
Maintaining hydration is very important. Don’t limit fluid intake. Dehydration can lead to a urinary tract infection which can increase incontinence episodes.
Establishing a routine for toileting can help minimize incontinent episodes. Remind the patient at regular intervals to use the bathroom. Every 2 hours is a good goal. Learn the bowel habit routine of the patient. They may typically need to use the toilet around the same time each day. Use adult words or terminology. Using “baby talk” can be demoralizing. Encourage the person to communicate, telling you if they need to use the bathroom. As some patients with middle to late stages of Alzheimer’s disease, they may not have the ability to tell you verbally. It is important for the caregiver to watch for non-verbal cues. These include:
As Alzheimer’s disease progresses, the patient may use other words or phrases that have nothing to do with needing a bathroom, to communicate they need to use the toilet. An example is “I can’t find the light.” Learn their phrases.
Be sure the bathroom is easy to find for Alzheimer's patients.
Monitor fluid intake. Encourage fluids during the day but limit intake to about 2 hours before bedtime. Try to avoid caffeinated drinks that increase urination such as coffee, tea, and colas.
Establish routines to minimize accidents. As mentioned earlier, toilet at regular intervals such as after meals.
Keep incontinence products available. These will help keep embarrassing incontinent episodes to a minimum for the patient.
Alzheimer’s disease starts with mild symptoms and progresses with time. In the beginning, patients are often aware of the changes in their memory. They may retreat from socializing with others. As memory loss increases and they move into the middle and late stages of the disease, they become less aware of what is happening around them. It is important to help this population maintain dignity as they lose control. If you are a caregiver, remember to take care of yourself. By doing this, you can be a better provider of care to your loved one.
Author Profile: Christine Kijek, Registered Colorectal Nurse
Christine Kijek is a colorectal nurse at Danbury Hospital in Danbury, CT. She has a wealth of knowledge in this field as well as personal experience. HPFY is thrilled that she has been an active participant in the Ostomy Support Group. She has experience working as a coordinator for cancer patients, post-operative care, and home health care for disabled children and adults. And guess what! Christine is also the recipient of the Nurse Exemplar Award. Christine lives in Bethel, CT with her husband Ed. Her children are married and live nearby. She has 4 grandchildren and is known as GiGi. Christine enjoys riding motorcycles and spends many hours gardening. She can often be found onboard a Carnival Cruise ship lounging by the pool.
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Christine Kijek is a registered nurse with a Bachelor of Science degree in Nursing. She has completed courses for wound and ostomy specialty and has 20 years of experience. She has ...
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